Rachel was moved from ICU to a normal room around noon last Friday (8/1). She was doing so well, that they discharged her the next morning.
She had a good week at home. She rarely complained of any pain or discomfort. She was pretty much normal, sporting her infectious smile most of the time. The only medication she needed was ibuprofen a couple times per day. We did let her spend extra time just lying around watching movies (she watched Lady and the Tramp what seems like 15-20 times).
Yesterday (Friday) afternoon, however, she had a slight fever and was kind of mopey. Sarah took her to the walk-in clinic to see if she might need antibiotics. The PA at the clinic would not prescribe any antibiotics without first getting a urine sample, so they sent her home with a cup to collect a urine specimen to bring back in the morning.
This morning, Sarah noticed that the lowest portion of Rachel's incision (just below the waistline) was leaking clear fluid (cerebral spinal fluid, CSF). So, instead of going back to the walk-in clinic, Sarah took Rachel to the ER at Children's Hospital in OKC. The neurosurgeon there said they need to re-suture the place where it is leaking, keep her overnight, then see if that stops the CSF leak.
So, this afternoon they gave her a Lidocaine shot, then put in a couple extra stitches. Other than the initial pain of the shot, she got the new stitches without incident and the external leaking has stopped for now.
Please join us in praying for God to heal her at the source of the leak.
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